Introduction
Having a rare skin disease like epidermolysis bullosa can be overwhelming. The skin is fragile and even the slightest touch can cause painful blisters....
Introduction
Rare diseases are confusing to many people. They tend to come on gradually, with odd symptoms that won't make sense at first. One of...
Introduction
If your child has a rare condition like autoimmune pancreatitis in children, it can be a tall order. Some of your questions may be:...
Introduction
Living with Guillain-Barre syndrome can be overwhelming. The sudden onset of weakness and fatigue, and difficulty with mobility, can be life-changing. But with the...
Introduction
You can often overlook odd swelling in your body. But, in some cases it might indicate a rare medical condition. This is where knowing...
Introduction
Think about your body holding onto something it does not want to give up. That is what happens in Wilson’s disease. A small error...
Introduction
Living with Ehlers-Danlos syndrome hypermobility type can be confusing. You may experience pain, weakness in joints or constant tiredness. Doctors can take years to...
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